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I’d be interested to know what other people wrote, or intend to write, in their online submissions. For example, how did people answer the 5th question; Q5: “Do you have any comments on the consumer input process? Please provide comments or suggestions on how this process could be improved (are the questions appropriate?, what worked well?, … Continue reading
Also what did people write, or what do people intend to write, for the 4th question; Q4: “What other benefits can you see from having this medicine on the PBS? Please describe any other benefits you think will come from having this medicine listed on the PBS (for example: fewer hospital visits, reduced time off work … Continue reading
Also what did people write, or what do people intend to write, for the 3rd question; Q3: “How will your life and that of your family and carers be improved by this new medicine? Please describe how you think this medicine will affect your life and the lives of your family or carers. Please explain why … Continue reading
I’d be interested to know what other people wrote, or intend to write, in their online submissions. For example, how did people answer the 2nd question; Q2: “What do you see as the benefits of this new medicine for you? Please describe the benefits you think the new medicine could have for your health? Do … Continue reading
I haven’t got my online submission in yet, but I’m drafting it today so I can enter it online on Tuesday, before the deadline on Wednesday. Hopefully others are doing the same. Some stars have already got theirs in !! I’m still struggling to find the right words (hard to believe I know, considering my … Continue reading
The APF will be hosting a chat session in the Member’s Area of their website to activate discussion on this topic on Sunday night 29-05-2011 between 7.30pm and 8.30pm EST. Look for the header AGHD or CGHD. The chat will be held in the APF’s Discussion Forum, which can be accessed securely through the Member’s log-in portal … Continue reading
GH Replacement therapy for deficient adults is well supported in the UK. Below are some documents from the Pituitary Foundation (UK) and NICE regarding GH therapy for GH deficient adults, and information about the appeals process that ocurred in the early 2000’s and final determinations about approriate use of GH in the UK. NICE Submission 2002 The document presented by … Continue reading
Newsletter 55, March 2011 This is the most recent newsletter from the APF. It contains a doctor’s article about GH benefits with references to supporting journal articles, a patient’s story, and guidelines about how to send your submissions to the PBAC. APF NL55 Mar 11 – Adult GH Deficiency APF Newsletters 2001-2011 NL18, March/July … Continue reading
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